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  anyone out there have minieres desease?

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Author Topic:   anyone out there have minieres desease?
Bill Yoder
Member

From: Orrville, Ohio, USA

posted 23 March 2006 02:24 PM     profile     
i had minieres desease about twenty years ago on the left side,and it gradually took my hearing onthat side.i now have it on the other side,and my tones and hearing are starting to go.thers no cure,but they are trying to slow it down.its very hard to cope with after 60+yrs of very enjoyable playing,lead and steel.was wondering if any of you ather guys had anything like this,and found some way to help it that i don,t know about?
Skip Edwards
Member

From: LA,CA

posted 23 March 2006 02:47 PM     profile     
Bill, sorry to hear you're going through that.

The House Ear Clinic out here in Los Angeles has been dealing with Minieres for awhile now. Their first high profile surgery was for astronaut Alan Shepard, and it was sucessful enough to put him back on NASA flight status, and on Apollo 14.

Might be worth checking out. My best to you.
(213) 483-9930 http://www.hei.org/

Bryan Knox
Member

From: Gardendale, Alabama...Ya'll come

posted 23 March 2006 02:49 PM     profile     
My 37 year old wife has it, and it IS quite an irritating disease, so she says.

Fortunately, though, it has not hindered her whatsoever from being able to hear me say things under my breath! Imagine that.

Sorry for your trouble. Hers seems to worsen a little each year.

Bryan

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Prevent Juvenile delinquecy...teach children to STEEL

Mr. DJ, can you please play a real country song? - Dale Watson


John Ummel
Member

From: Arlington, WA.

posted 23 March 2006 03:07 PM     profile     
God Bless You Bill,
We'll remember you in our prayers,
Johnny
LARRY COLE
Member

From: COLUMBUS, OHIO, USA

posted 23 March 2006 06:32 PM     profile     
Lloyd Green quit playing for years because of it. I was diagnosed with it in my left ear a few years ago. I first noticed two swishes one night laying in bed and then I figured out things sounded distorted. For two years it felt stopped up and I heard sounds at a lower pitch. Sometimes two notes apart. I was told there was no cure. I researched it on the internet. One guy said when he was put on cholesterol lowering medicine his went away. My doctor put me on zocor, and I took zinc and different vitamins. Lycopodium helps with noise sensitivity. You can get it a health food stores. It is listed for heartburn. God healed me of the ringing and roaring noises. I drive truck for a living and had to wear an earplug for a long time. The cause of it is fluid buildup in the inner ear.

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Playing For JESUS,LC. WILLIAMS U12,SHO-BUD PRO1,CARVIN TL60,GIBSON LES PAUL CUSTOM,YAMAHA L-10A ACOUSTIC,ROLAND JW-50 KEYBOARD,G&L AND BC RICH BASS'S


Mike Perlowin
Member

From: Los Angeles CA

posted 23 March 2006 07:12 PM     profile     
quote:
thers no cure...

Maybe, maybe not. WESTERN medicine says there's no cure, but here in Los Angeles, the local acupuncture school lists it in there brochure as an example of a disease cured by Chinese medicine.

Seems to me that it's worth checking out.

Chris Cummings
Member

From: England

posted 26 March 2006 01:47 PM     profile     
Hi Bill
Is it not spelt menieres desease there is a dedicated web page out there
I suffer from some of the symptoms but in the last 6months Ive been fine. I cut out caffiene and minimised my salt intake. Didn't work overnight but within weeks I was a lot better. Some people quit alcohol and smoking as well and find improvement
Roger Shackelton
Member

From: Everett, Wa.

posted 26 March 2006 04:02 PM     profile     
Here is some information about Meniere's disease from the Internet:

Key points for people with Meniere's disease. Meniere's disease causes sudden attacks of dizziness and hearing loss.
Meniere's disease also causes ringing or pressure in your ears. Symptoms may start in just one ear, but after months or years you may get symptoms in the other ear.
Attacks can last from about 20 minutes to several hours. You may need to lie down and you may feel sick to your stomach.

If you have Meniere's disease, you cannot hold a commercial driver's license in the United States.

Meniere's disease usually begins between the ages of 40 and 60. But it can start when you're younger. We don't know for certain what causes Meniere's disease, but over time or with certain treatments, symptoms will lessen or go away. Medicines to reduce dizziness, changes in diet, and sedatives are some of the treatments doctors recommend. For medical advice, consult a health professional.

Jerry Malvern
Member

From: Moreno Valley, California, USA

posted 26 March 2006 07:39 PM     profile     
My Dad had it. He had surgery, but lost the hearing in that ear. He continued to play his mandolin for forty years afterward, never missed a lick.
Eric West
Member

From: Portland, Oregon, USA

posted 26 March 2006 07:51 PM     profile     
It's probably not that disease, but for a few years I had virtually no hearing in ine ear, and got dizzy now and then.

It was through a period where I could not really afford any operations I thought I might need. I knew I'd popped a hole in my eardrum while very sick, and thought that when it healed the eardrum material kept growing as it sometimes does.

Many times with severe ear infections, peoples' eardrums blow holes in them and repair themselves nearly instantly. It's the fastest healing part of your body, and ear drum material grows on demand like cuticle tissue. Problem is, sometimes when the flap you might blow out during a fever and severe ear infection, it might not match the hole, and keep growing, eventually impacting and destroying the stirrup bones.( A friend of mine had titanium bones built and it cost about 20 grand.)

Luckily I went and saw the BEST at the Portland Hearing Center, had extensive tests and was prescribed Claritin D. It cleared up the fluid within three days. That's all it was. Now Claritin is non prescription, and I do take it if my ears plug, and my cold or whatever it is has broken.

Industrial Audiologists like the ones I saw are the ones I'd trust over standard GPs.

I think the whole shebang was a couple hundred bucks.

I think we're all thankful Mr Green prevailed over his bout with this condition.

I sure am.

EJL

Donna Dodd
Moderator

From: Kennesaw, Georgia, USA

posted 27 March 2006 02:07 AM     profile     
It’s my understanding that vertigo is another symptom of Meniere’s disease. Several years ago, I suffered from what the doctor called Benign Positional Vertigo for about 5 days. I don’t know how one would function with this all the time.
pdl20
Member

From: Benton, Ar . USA,

posted 27 March 2006 11:44 AM     profile     
I got it to some degree,i only have the tone pitch sound once in a while but the vertigo has been a pest.use antivert tablets,dr.script.makes me feel drugged and sleepy.don't like it but better than getting sick all over the place.mine is from inner ear infections and sinus drainagehad this for years.i use Flonaise or nasacort nose spray every day. and take Allegera-d also.man i wish they would find a cure.Dr. Told me welcome to old age .thanks alot doc.

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